| Introduction:
No Society can call itself civilized if its under
privileged members – the orphans, the disabled,
the incurably ill are denied care and attention. How
do we generally deal with the incurably ill? Once
a disease is declared incurable, the medical system
considers its work done.
Fortunately in India, family ties are strong, and
most families look after their own.
But when the relatives are not capable of doing this,
or when they are helpless and need to be supported,
the society has the responsibility to help them.
The patient is sent home to die in misery. “There
is nothing more we can do” will be what they
hear. So they take him home. Willing relatives are
often eager to help; but they seldom know what to
do. How can they help their relative in pain, with
vomiting, breathlessness and a host of other symptoms?
Where will he then go for relief from his pain, breathlessness
or other problems?
What
is Palliative Care?
The relatively new specialty of palliative medicine
offers some answers to some of these questions. It
attempts to provide pain relief and to control other
symptoms, at the same time offering emotional, social
and psychological support for the family members and
the patients with incurable illness.
The magnitude of the
problem is enormous. There must be at least 1.5 million
cancer patients in India. We have no reliable statistics,
but it is a fair guess that at least 90% of them would
be detected late, and would be incurable at the time
of diagnosis. And two-thirds of these would develop
pain at some time or other.
Ideal Palliative Care Center:
Palliative care center creates
an approach that improves the quality of life of patients
and their families facing the problems associated
with life-threatening illness.
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Provides relief from pain and other
distressing symptoms. |
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Affirms life and regards dying as a normal
process |
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Intends neither to hasten or postpone death |
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Integrates the psychological aspects of patient
care |
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Offers a support system to help patients live
as actively as possible until death |
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Offers a support system to help the family
cope during the patient’s illness and in
their own bereavement |
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Uses a team approach to address the needs of
patients and their families, including bereavement
counseling, if indicated |
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Will enhance quality of life, and may also positively
influence the course of illness |
Delivery of Palliative care:
The following general principles will
be worth remembering while planning palliative care
center.
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Team of Doctors consist of Palliative
care physician, Psychiatrist, and Oncologist |
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Paramedical team consist of volunteers from
the society, V.H.N qualified community Health
workers, P.G qualified Sociologist, P.G qualified
Psychologist, Three years Diploma in General Nursing
& Midwifery qualified Staff Nurse, D. Pharm
qualified Pharmacist and Coordinator |
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A good home care system |
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Hospice care for needed people. |
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A good public awareness and information providing
system. |
Why in
Madurai?
Madurai is an important destination
of South Tamilnadu and considered a commercial, social,
medical centre of surrounding of two revenue divisions,
seven revenue taluks and thirteen blocks. Population
of 25, 62,279 and areas of 3741.73 sq. km. There is
no such an organized palliative care centre. Ours
is going to be first kind of that in Madurai and also
in South TamilNadu.
Conclusion:
As part of our objective and the guidance from our
board members as well as General Physician, Anesthetist,
HIV Physician in the society we have decided to serve
for the incurable illness people, and their family
members also especially those who are in low socio
economically background by providing pain relief,
, offering emotional, social and psychological support
to patients and their family members. |